Holly Pereira, 19 When most young people place a video on YouTube, the aim is to share a cherished moment or favourite song. Holly Pereira hopes it will save her life. The 19-year-old cystic fibrosis sufferer fears she will not see her 21st birthday unless she receives a double lung transplant.
She has made a haunting, three-minute video about her plight which she hopes will persuade viewers to sign up to the national organ donor register.
‘There is nothing more I can do,’ said Holly, whose father John is a plastic surgeon, at the family’s country house in Buxted, East Sussex.
‘If I can get just a few people to sign up to the register which in future saves lives, even if it’s too late for me, that would be amazing.’
Holly was diagnosed at 18 months with the genetically inherited disease, which affects the digestive and respiratory systems.
Despite daily medication, she has only 20 per cent of her lung function left.
She has spent six months on the national transplant register and is desperately awaiting a call to say that a donor has been found.
The Pereira family’s position is doubly heartrending as Holly’s brother Jake, 18, also has cystic fibrosis and will need a transplant at some point.
In the black-and-white clip on video-sharing website YouTube, she says cystic fibrosis ‘makes the smallest, everyday tasks, like showering, walking or taking the stairs very difficult as I get out of breath very easily’.
\'Being put on the list means that my chances of survival without a transplant may mean I only have a few years left to live.
\'Due to the lack of organs available I may find it hard to find a suitable donor. I am very small and my blood type that I am means I may have a longer wait.
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‘This could be 18 months or over and during this time my illness may get progressively worse, which means I may rely on oxygen to breathe and may not be able to get around properly.
\'To be able to receive a new pair of lungs would mean that my life would be significantly better, I would be able to do things I can’t do at the moment.\'
She ends the video by urging people to sign up to the organ donor register and saying how, once she does not need them, she will give \'any of my healthy organs away\'.
She reminds viewers that the most crucial step is to let close family know what organs they would wish to donate as they have the final say after death.
Her grandfather David Nicholson, 67, said he was in tears when he watched the video, which she posted without telling her family.
His wife Carol added: ‘We are very proud of what she has done and we want people to come forward and register so it gives youngsters like her a chance in life.’